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Saturday, February 25, 2017

#MCL?▶ #SocialCurrentSee

ACOR▶ a large collection of cancer-related online email lists, which has delivered millions of email messages to subscribers across the globe.

An INTRANET is a private network accessible only to an organization's staff or members. Generally a wide range of information and services from the organization's internal IT systems are available that would not be available to the public from the Internet.  By function, ACOR is an INTRANET site.

 When a #Canswerist (aka cancer survivor or caregiver) looks to begin or extend research for their diagnosis (DX), the world wide web (or internet) is a logical starting points.  Typically, such a search may lead to discovery on a range of INTRANETS. 

This and other archived content for #Canswerist is to
CANswerWorth via @flipboard

 Following such research and exploration, #Canswerist offers this archive introduction to the content below. Basically, this follows receipt of a significant private ACOR email stream generated by a fellow MCL survivor Max Wood.

many people are affected by MCL?

Mantle cell lymphoma is a rare type of non Hodgkin lymphoma (NHL). Only about 5 out of every 100 people (5%) diagnosed with Non-Hodgkin's Lymphoma
(NHL) have mantle cell lymphoma. It mainly affects men who are over age 50.



(now read this excerpt from ACOR contributor Max Wood)

Note:  This information, of course, is a layman's account of a clinical and scientific subject. What is not scripted here are the numerous email responses and additional messages from the source to amplify this story.  Readers must join the ACOR message board in order to view all of this information.  Hence, you must be a real #Canswerist (cancer survivor or caregiver) to conduct further research into this subject at the ACOR source.

What exactly is MCL and what is the cause? I don't know why it has taken me so long (3 years since DX) to attempt to more fully understand our disease, but I've been working on that lately. This is my understanding and I would appreciate comments, suggestions any thoughts you may have in general.


+ this

MORE  Flip②:  Not only is this KINDLE book an inspiring survival manual for cancer patients, but its humor and objectivity make it a choice read for anyone who enjoys real-life drama and pathos. Diagnosed with Mantle Cell Lymphoma in 2012 the author resorted to a blog to keep in touch with friends, and unwittingly ended up writing about the good, the bad and the ugly side of cancer, which attracted many followers. Is there a good? Very possibly. Bad and ugly, definitely. There is also an extremely funny side - wry observations that brought humour into an otherwise bleak landscape which included chemotherapy and a stem cell transplant. The author is also blessed with a big following from the Mind, Body, Spirit community of which she is a part (including Judy Hall, Anita Moorjani, Dolores Ashcroft-Nowicki); from this outpouring of expert support came advice on nutrition and alternative therapies which help to make this an invaluable source of information for cancer patients and their carers.

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