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Saturday, May 11, 2013

Timekeeping in the SCT zone


If there has been a lesson and, of course, there have been many that came out of the ocurrence of mantle cell lymphoma (MCL) in 2006, it is that time-keeping has a necessary, but continuous presence.

As of this post, we mark 68 months since my successful stem cell transplant.  That's 5.66 years or 1833 days.  Does that mean we are cured?

Of course, we hope and pray that is the case, but none of my doctors will proclaim a cure.  Never, for the remainer of my life, can we expect that certainty.  Yet, survival is good and the best outcome of all.  What is it they say about not focusing on the destination, but enjoying the journey?

Dee Dee and I along with our friends Larry Fetters and Kathy Wright spent several hours at City of Hope yesterday (May 10) for the 37th annual BMT Reunion with an estimated 5000 participants. Gathered in Duarte were those BMT and SCT survivors like me (since Aug. 22, 2007). Just a few yards away was the Helford Hospital where my transplant was performed.  As the crowds assembled on the hospital's north lawn, probably about three dozen transplant patients occupied beds waiting for the day they could also celebrate with us.

Below, Dee Dee and I pose with my chief oncologist Dr. Ryotaro Nakamura. Just a fabulous day to share with the celebrating crowd of survivors, their caregivers, friends, and loved ones. }:{  alt@LINK  }:{  This link provides a slide show of our day.




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constant web and mobile communication
Also see : exit Everything ||  HALLMARKS  ||  Our SCT Xperience
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When you change the way you look at things, the things you look at change

Tuesday, May 7, 2013

Survivor : She showed me, now she can show you

Survivor : She showed me, not she can show you Roslyn Franken is a proud young adult cancer survivor who knows the power of emotional resilience in the face of change, challenge and adversity. She was born to a mother who survived the concentration camps in Nazi Germany and a father who survived the atomic bomb in Nagasaki, Japan, as a prisoner of war. When diagnosed with Hodgkin's Lymphoma cancer at the young of age 29, Roslyn quickly learned she inherited her parents' "NEVER GIVE UP" attitude as she herself fought back to become a long-term survivor.
 _____
and publisher of alt@cities on paper.li for
constant web and mobile communication
Also see : exit Everything ||  HALLMARKS  ||  Our SCT Xperience
___
http://altacities.com  The alternate blogs ~ Productions by #ALTALOMAN
When you change the way you look at things, the things you look at change

Sunday, May 5, 2013

The best part of social media: Regular clips from family

Found this clip on my FB Wall from daughter Suzanne, an entry today from her Facebook about their trip to San Diego where son-in-law Warren is the technical director for the TV broadcast of the Diamondbacks-Padres game.   Believe me, grandson John knows much more about these control knobs than you might believe.  Given that our Angels lost today (May 5) to the Orioles, it is too bad that the Padre's broadcast will not be seen in the LA market.

Indeed, this is the best part of social media:  Regular updates from family!



and publisher of alt@cities on paper.li for
constant web and mobile communication
Also see : exit Everything ||  HALLMARKS  ||  
___
http://altacities.com  The alternate blogs ~ Productions by #ALTALOMAN
When you change the way you look at things, the things you look at change

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